NEW!! Face update!

So I told you guys a few blogs back that we are wanting to go to PA! well that is not the news I got for y'all today, sorry : ( I wish it was tho, anyway you need money to move right! Well I got a baby sitting job from 2 am till they got on the bus.

They are the cuties little ones out there, and it was sad watching the little but heads get on the bus, I did not cry but it was sad. Anyway so now we can start saving for the PA trip since we are both working. I am still looking for other baby sitting jobs because this one is not going to cut it but its a start : ) Wish me luck!


So I made this blog to tell y'all about my struggles of my face and I have missed a few months of telling you whats been going on so lets back this train up just a bit and go back to my birthday.  I turned 19 on the 28th this year and instead of cooling down in the nice a/c like everyone imagines to do in fl on such a hot day we ended up having a crappy day! Majorly crappy!  So we have major scum lords for our land lords and they do not want to fix anything. Well the a/c went out on my birthday and they said they would fix it, did not happen till the day after!

I wanted a home made Ice cream cake so this is how that went!

Take the Ice cream out of the freezer calmly.
HURRYYYY PUT IT TOGETHER ITS ALREADY MELTING IN OUR HANDS!

It got really hot in the house that side effect one started to happen, face starting to swell. 
Every time my face has started to swell, well that is when it starts to paralyze.
So we had all our fans going and that was not doing anything, It was colder outside then in the house! I ended up washing my truck just so I can get into the water, even stood in the shower for a bit. Nothing was helping. They made me my favorite food for dinner and I could not even eat that. My mom dad and my boyfriend had to break down and get a small a/c unit that we stuck in the living/dining room. In the dinning room we put up blankets to block off the kitchen, hallway, front door, pretty much just put me in a tiny room. They gave me my pain medication because next thing you knew side effect two started. Head pain ( This is not a head ache). So now from there I was loopy. They kept making me stick my face in a freezer yes the freezer. Finally they just wanted me to go to bed and they mad sure I had the ice pack on my cheek the whole time. 

Its been so hot outside that they wont even let me go spend time with my bunnies, let alone go do laundry.
Our washing machine is in the shed and we have to hang dry out clothing cause to run the dry is a lot of money, witch all of us know about money problems lol. Well My boyfriend does all the stuff outside for me until we can finally figure out what is wrong. 

Please spread the word every one. There might be people out there with the same thing I have, or a doctor that might have a clue. I am working with shands Hospital but they can not even figure this out.. All I ask is to spread the word. We had no idea what causes my episodes, we have done allot of research, seen allot of doctors. We just do not know what else to do. I even wrote Ellen (one of my favorite shows) hoping maybe she can get the word out. So I do not have cable and will not know if she does tell. So maybe some time soon, someone will be able to help.. Thank you for all of your support,


Yours truly -summer